National Dementia Act​​​​​​​ion Alliance Newsletter May 2020

NDAA logo
We hope everyone is keeping as well as can be during lockdown. We are aware that many of you may be struggling at this time as the weeks go on and uncertainty remains. In response to this the NDAA have launched its Staying Connected campaign in order that we remain socially connected during this pandemic and come together to especially support people affected by dementia. 

National Dementia Action Alliance Updates

Staying Connected campaign

The NDAA have launched its campaign, Staying Connected: How to remain socially connected during Covid-19. The aim is to showcase all the wonderful work and projects our members are doing for people affected by dementia in response to the Covid-19 pandemic and to ensure information out there is easily accessible and available to those in need. #NDAAConnect 

NDAA Member Covid-19 response

This is what some of our members are already doing: 

3NDWGWebinar hosted by people living with dementia:

pandemic self isolation & difficulties. 

Alzheimer’s Society
They have a number of resources on offer to help people affected by dementia during the Covid-19 pandemic including a Volunteer Toolkit

Interactive arts opportunities during Covid-19. 

British Psychological Society
Supporting older people and people living with dementia during self-isolation. 4

Dementia Adventure
Offering free dementia skills sessions online. 

Dementia UK
Covid-19 information for families looking after someone with dementia. 

Department of Health and Social Care
DHSC have compiled a list of key resources for Covid-19. 

Hallmark Care Homes
Hallmark has introduced a new App called RelsApp to help keep everyone connected. 

Innovations in Dementia
Resources for volunteers: videos and a guide. 

Lewy Body Society
Covid-19 advice sheet for people living with LBD and their families and carers. 

Memory Tracks
Memory Tracks, has launched an initiative to provide free hand-held digital devices to help residents living in care home isolation communicate with their loved ones. 

NHS England
Developed a visitor guidance on Covid-19, which mentions dementia. 

6 months free use of ReMe activities and communications software. 

tide, Lewy Body Society, and University of Bradford
Covid-19 national social service closure research study. 

For further details read the Staying Connected page 


Celebrating a decade of the NDAA
The third achievement to celebrate is the Dementia-Friendly Hospitals campaign. This saw the launch of a charter, which provides high-level principles of what a dementia-friendly hospital should look like and recommended actions that hospitals can take to fulfil them.

It has since been updated to include a section on the important role of hospital volunteers. It is aimed at staff and volunteers in hospitals, and takes into account the latest guidance and the NDAA’s updated Dementia Statements.

It also includes a poster that can be displayed in hospitals that summarises the elements of the charter that people living with dementia and carers can see in clear view when they visit. 

Read more about Dementia-Friendly Hospitals
Read the NDAA top ten achievements 


NDAA feature in Alzheimer Europe news and on their website

The NDAA feature in the latest Alzheimer Europe news and on their website following the report launched in April in response to the “From Seldom Heard to Seen and Heard” campaign. It explains what has been achieved since 2017 and sets out recommendations.
Read Alzheimer Europe article on NDAA  

​​​​​​​Member News

Webinar: Innovations in Dementia Covid-19 volunteer resources
Innovations in Dementia and people living with dementia will be sharing the volunteer resources they have developed in response to Coronavirus (Covid-19). 

These resources are all based on what people with dementia have said matters to them. The person with dementia can give the tips to their prospective volunteer and use them as a basis for discussion about their individual needs and preferences. 
Register for webinar 


Womens unpaid dementia care and the impact on employment
Alzheimer’s Society’s latest report, ‘Women’s unpaid dementia care and the impact on employment’, explores how unpaid dementia care disproportionately impacts women’s ability to continue paid work.
The report draws on the findings via Alzheimer’s Society’s international networks, gathering evidence relating to the gender dynamic of unpaid dementia care and includes the experiences of women in the UK, providing dementia care support to family members while balancing paid work.
Read the full report  

Trustees required for tide charity
If you want to make a difference to carers of people with dementia now is the time!  tide are looking for trustees to achieve their vision of ‘a world where carers of people with dementia use their choices & society reflects & responds to their unique needs’.

Trustee positions include Marketing and Fundraising, Human Resource Management, Finance, and Business acumen.  

The deadline is 28 May. You can find out more and apply below.

Apply to become a tide trustee  

Beth Britton blog: Coronavirus and being isolated from a loved one
This month, Beth Britton explores the topic of families affected by dementia not living in the same household and touches on the pain and fear felt by all parties as well as providing some practical tips to keep in touch with your loved one when apart.

Coronavirus and being isolated blog  

11th National Dementia Care Awards

In light of the current pandemic, now more than ever, we should be recognising and rewarding the very best people who work in the hugely important field of dementia care.

Dementia care providers who wish to celebrate their staff are also encouraged to enter the 2020 Awards and be part of a fantastic event which culminates in their prestigious Gala Awards Night.
Nominate for the National Dementia Care Awards  

Member Achievements

This year we’ve focused on our Just 1% campaign for increased investment in dementia research. Funding for dementia research falls significantly short in comparison to other serious health conditions – receiving only 0.3% of the annual cost of the condition to the economy compared to 1.6% for cancer research.

We called on government to invest 1% of the total annual cost of dementia in research each year, giving dementia the same political priority and support as diseases like cancer and heart disease so we can accelerate progress towards life-changing treatments.

We raised awareness of this issue with MPs and Peers throughout the year, as well as bringing it to the attention of the public through media activity. Our petition to increase funding for dementia research was signed by 35,000 people, and we delivered it to 10 Downing Street with Alzheimer’s Research UK Champions Carlie Pirie and Shaheen Larrieux and television presenter Rachel Riley.

In its general election manifesto the Conservative Party pledged to double dementia research funding. We’ll continue to campaign to hold the government to account on its promises.  

If sharing this newsletter with colleagues, please send it as an attachment in an email rather than forwarding on, in order to preserve the formatting. Thank you.